Am I going to die because of hereditary hemochromtosis C282Y ?

This was perhaps the first thing that went through my mind when I found out I had this hereditary condition. My blood test results showed my body had stored a lot of excess iron, well above 10x what it should have been.

From what I read, the body storage of excessive iron above a level of 1000 ferritin, increases your risk of a fatal heart attack by as much as much 5 times more likely. Thats a fatal heart attack. Excessive iron stored in your body is very toxic and can increase risk of various cancers and damage to organs, including liver, pancreas, heart.

Most people with hereditary haemochromotosis/hemochromotosis if not treated will have there lifespan reduced by several years. Its not just the fact this will reduce your lifespan, it will also make you feel weak and listless. Causing joint pain and reducing your ability to recover from exertion. There is a reason its called the Celtic curse.

I’m hoping now that I am at maintenance level many of my health problems will get better or at least milder. I’m hoping now my iron storage levels have been reduced from 2880 ferritin to 27 ferritin . Which has taken nearly 18 months of weekly then bi weekly then to every 4 weeks. It’s a long slog getting de-ironed. Can’t thank the NHS nurses that carried out my many, many venesections enough. they are fantastic.

I am hoping I will start to have more energy and less aches and pains. At the moment I definitely feel more energetic and have been doing a fitness routine for nearly 6 weeks now. My aches and pains are also reducing. Hopefully this is where I start recovering from the Celtic curse.

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.